The myth of reproducibility: A review of event tracking evaluations on Twitter.

Event tracking literature based on Twitter does not have a state-of-the-art. What it does have is a plethora of manual evaluation methodologies and inventive automatic alternatives: incomparable and irreproducible studies incongruous with the idea of a state-of-the-art. Many researchers blame Twitter's data sharing policy for the lack of common datasets and a universal ground truth-for the lack of reproducibility-but many other issues stem from the conscious decisions of those same researchers. In this paper, we present the most comprehensive review yet on event tracking literature's evaluations on Twitter. We explore the challenges of manual experiments, the insufficiencies of automatic analyses and the misguided notions on reproducibility. Crucially, we discredit the widely-held belief that reusing tweet datasets could induce reproducibility. We reveal how tweet datasets self-sanitize over time; how spam and noise become unavailable at much higher rates than legitimate content, rendering downloaded datasets incomparable with the original. Nevertheless, we argue that Twitter's policy can be a hindrance without being an insurmountable barrier, and propose how the research community can make its evaluations more reproducible. A state-of-the-art remains attainable for event tracking research.

Dwarna: a blockchain solution for dynamic consent in biobanking.

Dynamic consent aims to empower research partners and facilitate active participation in the research process. Used within the context of biobanking, it gives individuals access to information and control to determine how and where their biospecimens and data should be used. We present Dwarna-a web portal for 'dynamic consent' that acts as a hub connecting the different stakeholders of the Malta Biobank: biobank managers, researchers, research partners, and the general public. The portal stores research partners' consent in a blockchain to create an immutable audit trail of research partners' consent changes. Dwarna's structure also presents a solution to the European Union's General Data Protection Regulation's right to erasure-a right that is seemingly incompatible with the blockchain model. Dwarna's transparent structure increases trustworthiness in the biobanking process by giving research partners more control over which research studies they participate in, by facilitating the withdrawal of consent and by making it possible to request that the biospecimen and associated data are destroyed.